866-MGLIFE8
Myasthenia Gravis New York Community
Join us in our mission to support the myasthenia gravis community in White Plains, New York
Meetings via Zoom 3rd Thursday of the month
Our Mission
The MG New York Community group is a patient support chapter of the Myasthenia Gravis Holistic Society, Inc.
Empower MG New York
Join us in empowering individuals and communities through your generous donation to MG New York. Together, we can create positive change for people diagnosed with myasthenia gravis.
Click https://us06web.zoom.us/j/2362106898?pwd=AXlabKWEUb9NVaaNh82aaAks8olI1J.1&omn=88486035681 to join our meeting.
Join MG New York's Community Today
Meet your Support Group Leaders
Vanetta Drummer- Fenton
Primary Leader:
Vanetta is leader, business owner, advocate, wife and mom who is dedicated to helping the myasthenia gravis community thrive! As a person diagnosed with myasthenia gravis she has first hand experience of what it is like to have myasthenia gravis from her lived experience. Her genuine and compassionate nature comes across with every encounter making attendees at our MG New York support group feel warm and welcome.
Email: VanettaF@mgholisticsociety.org
Co-Lead Pending
Co-Leader
MG New York Support Group
About Myasthenia Gravis
About Myasthenia Gravis
About Myasthenia Gravis
Myasthenia Gravis ( my-us-THEE-nee-uh GRAY-vis) is a rare chronic autoimmune neuromuscular disease that impacts the voluntary muscles. Myasthenia Gravis literally means grave muscle weakness. Unlike other diseases we haven’t seen a modern day celebrity come out and say they have myasthenia gravis so you are our celebrity, warriors an
Myasthenia Gravis ( my-us-THEE-nee-uh GRAY-vis) is a rare chronic autoimmune neuromuscular disease that impacts the voluntary muscles. Myasthenia Gravis literally means grave muscle weakness. Unlike other diseases we haven’t seen a modern day celebrity come out and say they have myasthenia gravis so you are our celebrity, warriors and heroes.
EVERY person diagnosed with myasthenia gravis experiences symptoms differently! This is why you may hear it referred to as the snowflake disease. For this reason, treatment for everyone diagnosed with myasthenia gravis is different.
FACTS:
Myasthenia Gravis is not contagious. It is most commonly found in men over 60 and women under 40. Myasthenia is one of over 7000 rare diseases. It is often overlooked in BIPOC communities.
TESTING:
Myasthenia Gravis is most commonly diagnosed my checking for abnormal levels of acetylcholine receptor antibodies (AChR), muscle-specific tyrosine kinase (MuSK) or low-density lipoprotein receptor related protein 4 (LRP4). There is also another type of antibody called Agrin that you may be screened for.
Double-seronegative Myasthenia Gravis (dSNMG)
There is also a whole community of people who do not have any currently known biomarkers however have all of the classic symptoms of myasthenia gravis. We know it is frustrating however new treatments are being developed.
A repetitive nerve stimulation or single fiber electromyography (EMG) may be used to detect impaired nerve to muscle transmission may be also considered. This is an extremely uncomfortable test and hopefully you only have to get it done once.
Some cases of MG are diagnosed from having a chest CT or MRI which shows if there is a tumor on the thymus gland called a thymoma. Don't panic as these tumors are usually non cancerous. Having this surgery stops the production of autoantibodies that attack the muscle nerve connection. About 15% of MG patient develop a thymoma. Surgical intervention may be required. Weigh your options of technique used. Ask your doctor to explain transcervical, transsternal and videoscope based on your individual case.
Lastly, a neurological examination may reveal decreased muscle strength or impaired eye movement. Some people experience MG only in their eyes while other experience more generalize symptoms.
Cure
While there is no known cure, people diagnosed with myasthenia gravis can live a full life with lifestyle modifications and the recommended treatments directed by their physician. You are NOT alone!
Our Programs
About Myasthenia Gravis
About Myasthenia Gravis
Support Group:
As a chapter of the Myasthenia Gravis Holistic Society, Inc., we are pleased to offer a virtual and in person support group for people living with myasthenia gravis and their caregivers in the White Plains, NY area.
Our meetings are on the Third Thursday of the month except June and November. We invite you to come, liste
Support Group:
As a chapter of the Myasthenia Gravis Holistic Society, Inc., we are pleased to offer a virtual and in person support group for people living with myasthenia gravis and their caregivers in the White Plains, NY area.
Our meetings are on the Third Thursday of the month except June and November. We invite you to come, listen, participate, learn, and thrive together on our myasthenia gravis journey. We treat everyone like our chosen family.
Awareness:
Part of our core mission is to create awareness about myasthenia gravis. We do this by attending community events, hosting our own events, social media, and our website.
Programs:
We are proud to offer my myasthenia community health coaching and personal training scholarships. Hope’s Pantry will be launched for our NY location in 2025. Hope’s Pantry provides items for activities of daily living that may be needed by our MG community free of charge.
Direct to you:
Eye Patches
Drug Precaution Wrist Band
Emergency card
Emergency Wrist Band
File of Life Emergency Card
If you are in need any of these items to help make living with MG easier contact us at info@mgholisticsociety.org
Wellness Retreats:
Each year we offer wellness retreats that our group will have priority access to before the general public. These retreats provide one on one assistance, group coaching, holistic wellness information, healthy foods and more.
Volunteer Opportunities
About Myasthenia Gravis
Volunteer Opportunities
Volunteers are the backbone of our organization. We offer a variety of opportunities for individuals and groups to get involved and make a difference in the lives of those we serve.
Thank you
Thank you to everyone who came out to our two awareness day events.
Donate to our cause
$0.00
Donation mailing address:
Myasthenia Gravis Holistic Society
235 Ponce De Leon Place
Suite M141
Decatur, GA 30030
MG New York: Needs your support
Learn more about our history and how we got started. We are passionate about empowering communities and making a difference in the MG Community.
Shop for a cause
Shop for swag and help us raise money for our research projects. By shopping this store a portion of your purchase is automatically donated us. It’s a win for everyone. This is our year round fundraising page.
www.MyMGLife.com